Life

I haven't posted in forever...here's some updates:

*Only four weeks until summer vacation!! YAY!!
*Hannah survived her first experience with the TAKS test (state testing)
*Hannah worked up the courage to audition for the school talent show, playing the piano...now we wait to see if she made it (they have almost 100 students auditioning for about 30 slots
*Rachel "graduates" from Pre-K in two weeks (the mayor is the guest speaker, WOW!) and has her first ballet recital in 3 weeks
*Rachel has been going to occupational therapy for about a month now, she loves it!, and she sees a new pediatrician this week in our search to understand her pain (the therapist says the pain is not part of her SID diagnosis, and suggested we get a new pediatrician), please pray for this (tonight Rachel prayed to God that He would give her "new body parts" without pain so she wouldn't hurt when she starts kindergarten)
*I finish my graduate coursework next week (WOOHOO!!!), but I have to wait until August to graduate because Spring graduation is this weekend and my class goes over by a week (that's ok, I'll still be done)

Life is busy!!
  • littlebit
    Sounds like you have been busy! Hopefully, this summer we can get together :-)
    by littlebit at 05/04/10 11:15PM
  • polaramy
    Wow - busy!
    by polaramy at 05/05/10 1:48PM
  • nanajamma
    Sounds like good things happening-congrats on the graduation!! So wonderful to see you last month!
    by nanajamma at 05/06/10 7:41PM
  • sharon
    Congratulations on finishing school!!!! J finishes his MBA this month and I'm SO glad it's over!!!
    by sharon at 05/11/10 2:20PM
  • 5ofusisgr8
    Will this make you Dr. Heather?
    by 5ofusisgr8 at 06/14/10 12:32PM
  • cabinmommajuju
    thanks for the birthday wishes! i am sorry about little rachel's pain :( i sure wish i could hug your neck..here's one from afar!!!! love you!
    by cabinmommajuju at 08/13/10 3:41PM

Update

Rachel saw the neurologist today, and he did a thorough job of evaluating her, however he is quite sure she does not have neuropathy. I guess that is good, but leaves us with still no answers. He is doing more blood work to look for a few other things and he asked me to begin having her work with a pediatric occupational therapist to try "sensory integration". He wants us to look at her having a hyper sensory condition which affects just a couple of areas of her body. He hopes that with therapy she might learn to not have reactions/pain in those areas. We'll try anything!! Does anyone know a reputable pediatric OT on this side of town? This doctor she saw today is at Medical City Dallas and I can't drive over there several times a week for therapy, but he didn't know anyone over this way. Thanks for your continued prayers!!!
  • pokey
    That's good and bad news. Hopefully you can find someone close that can start working with her. We will continue to pray! Thanks for updating us.
    by pokey at 02/05/10 6:49PM
  • beckyd
    We'll continue to pray for sweet Rachel.
    by beckyd at 02/06/10 10:04AM
  • sharon
    When I worked in coppell we had SO many kiddos come in diagnosed with SID. I don't know what ped they were using!!!!
    by sharon at 02/06/10 1:44PM
  • mommakeeb
    I will keep her in my prayers.
    by mommakeeb at 02/06/10 7:46PM
  • jenniferlyn
    Hey, I'm an ot but don't know that area very well. I sent out an email to my old classmates to see if they have any reccomendations. I'll pass on what I find out.
    by jenniferlyn at 02/07/10 6:47PM

My sweet Rach

I'd like to request prayers for Rachel. As many of you know, she has battled pain since she was a baby and has endured lots of tests and hospital visits, but with no determination of the cause. She tries really hard to just be a happy kid, and hide her pain, but since she will go to school this fall, I am determined to find a doctor that will find a solution so she doesn't have to go to school in pain. It just breaks my heart to see her tears. The last few months we have dealt with an allergist to eliminate all possible food allergies that might be causing the GI problems. He eliminated allergies as the culprit, and after evaluating Rach, he suggested we see a neurologist and pursue "peripheral neuropathy". My sister and I have researched this and many, many of her symptoms fit what we have read about. So, this Friday we are going all the way to Medical City Dallas to see the top pediatric neurologists in north texas. Please pray that they can figure this out! I am sure that it will mean many more tests, but if it gets us to a diagnosis, we can move forward and help her. Thank you!
  • sheshe
    Will certainly keep you and Rachel in our prayers!
    by sheshe at 02/01/10 11:12PM
  • littlebit
    Praying for all of you :-) Give Rachel a hug from baby KK :-)
    by littlebit at 02/01/10 11:14PM
  • txwhittlec
    Poor Rachel. I will pray for her.
    by txwhittlec at 02/01/10 11:21PM
  • meagan
    Praying for Rachel!
    by meagan at 02/02/10 12:14AM
  • sdbaxley
    We hope and pray they will find the solution to her problem.
    by sdbaxley at 02/02/10 7:24AM
  • laughing_eyes
    Absolutely.
    by laughing_eyes at 02/02/10 7:49AM
  • beckyd
    Most definitely praying for her....bless her heart.
    by beckyd at 02/02/10 12:22PM
  • mommakeeb
    You all are in my prayers. I pray they can find out what it is.
    by mommakeeb at 02/02/10 12:40PM
  • pokey
    Poor girl. And poor momma too! Praying you all can find a diagnosis and that it'll be one easy to treat. Please keep us posted!
    by pokey at 02/02/10 1:39PM
  • polaramy
    Praying.
    by polaramy at 02/02/10 2:04PM
  • nik
    praying for rachel and you!
    by nik at 02/03/10 9:36AM
  • sharon
    I'm sorry you guys are still trying to figure all of this out. I hope the appointment is a huge success!!
    by sharon at 02/04/10 10:41PM

Happy New Year!

Here's to a wonderful 2010, full of the Lord's blessings!!
  • 5ofusisgr8
    Here, Here!
    by 5ofusisgr8 at 01/01/10 9:32PM
  • txwhittlec
    Thanks! Happy New Year to you too! :)
    by txwhittlec at 01/01/10 10:43PM
  • sunshinebear
    You too!
    by sunshinebear at 01/02/10 10:43AM
  • beckyd
    Happy new year to you!
    by beckyd at 01/03/10 1:26AM
  • sheshe
    Ditto!
    by sheshe at 01/03/10 4:32PM
  • sparker
    Happy New Year!
    by sparker at 01/06/10 11:17PM
  • nik
    amen
    by nik at 01/08/10 10:30AM

Need a new entry...

It was a great day! Played 18 holes of frisbee golf with my brother and aunt (dragged both girls with me and they were wonderful, loved being outside all morning). Then we decided spur of the moment to go to NRH2O, that would have been better if the sky didn't turn gray and the temperature drop to 80 (a little cold for water rides). Then we headed to the hospital to meet baby Caleb. He's a cutie!

Tomorrow we head to the lake. There is work to be done, but I feel quite sure we can sneak in a little swimming and jet skiing. I bought new water skiis and a stronger tow rope Monday, definitely need to try those out.

Life is good!!!
  • sunshinebear
    Fun times!
    by sunshinebear at 07/24/09 8:14AM
  • laughing_eyes
    YAY water skis!
    by laughing_eyes at 07/25/09 5:47PM
  • crumpledart
    Glad ya'll had fun! Yay for the new water skis! I know you are enjoying those!
    by crumpledart at 07/30/09 9:20AM
  • chica
    Wish we could have been there too!
    by chica at 08/08/09 7:11PM
  • yellowrose
    Thanks but I really don't feel like I put as much effort into it as I wanted to. I appreciate that coming from you especially though!
    by yellowrose at 08/09/09 7:52PM
  • laughing_eyes
    Is PALS this weekend?
    by laughing_eyes at 08/21/09 5:40PM
  • nik
    Frisbee golf is fun!
    by nik at 08/21/09 9:37PM
  • nik
    good luck on another school year! im still in shock i think that it is actually august again
    by nik at 08/21/09 10:23PM
  • crumpledart
    Just wanted to let you know that I'm thinking of you. :)
    by crumpledart at 09/07/09 7:18AM
  • sheshe
    Also wanting to let you know I'm thinking of you!
    by sheshe at 09/09/09 11:53PM
  • yellowrose
    *HUGS*
    by yellowrose at 09/10/09 2:22PM
  • nik
    check the fun stuff group. we are trying to have a party sunday night
    by nik at 09/15/09 9:39AM
  • sharon
    I would love some more information..anything you can share/loan. I am swamped with this fundraiser and should have a breather again by next week.
    by sharon at 10/06/09 8:02AM
  • nik
    thanks for the prayers! he is doing great so far, but hasnt started rehab on the knee yet. He lives in west texas but his doctor for his heart/lung disease is in dallas, so the surgery was in dallas yesterday.
    by nik at 10/20/09 9:02AM
  • nik
    are you interested in halloween partying with us?
    by nik at 10/27/09 12:09PM
  • nik
    that sounds like a plan. i told hannah i would ask you again because she said you said no! no aaron is not cooking anything. we did talk about it and he may end up bringing ice again or something!
    by nik at 10/28/09 9:15AM
  • nanajamma
    Hi, I've been thinking of you, haven't been on here in forever! Hope ya'll are doing well. Thanks for Keven's BD greeting. Hugs to the girls.
    by nanajamma at 10/29/09 4:04PM
  • beckyd
    Thanks for the suggestion- I really do just want him to get around more kids, so that may be a perfect solution. Thanks again!
    by beckyd at 11/13/09 4:03PM
  • yellowrose
    Thanks, I love it too! I am glad everyone came. I LOVE having people over.
    by yellowrose at 12/01/09 9:59AM